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Welcome to VitaFriends
Dear VitaFriends,
The Vitaflo team hopes that you are all enjoying the summer and staying cool as you relish the remaining weeks of warm weather before school is back in session! Our team has had great experiences getting to meet and work with some of you at the various activities and events that took place in the metabolic community this summer, and we look forward to seeing many more of you at local events in the coming months!
This exciting edition of the VitaFriends newsletter offers a lot of useful information, as you will learn about a unique and exciting program recently implemented at Children's Memorial Hospital in Chicago called "PKU Boot Camp" and their successful efforts to offer additional support and education to adults managing PKU. And for those of you still planning to go on a summer vacation or have an upcoming trip, you will get helpful tips from some VitaFriends members who provide advice for managing your diet while traveling on the road, and guidance for taking your medical formula on an airplane. You'll also enjoy getting some fun and festive low-protein recipes, updates from the National PKU Alliance, and info on upcoming events!
Be sure to also check out our Website and take advantage of all the convenient resources, and share any information, stories, ideas, etc. on our Facebook page! www.Facebook.com/Vitaflo.
Enjoy reading this edition, and we'll look forward to communicating again in the Fall!
From the Vitaflo USA Team
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Dietitian's Corner
PKU Boot Camp
Heather Bausell RD, LDN; Maryam Naziri RD, LDN; Rachel Katz MSW, LSW; Lauren Leviton MA, LCSW
Division of Clinical Nutrition/Genetics Children's Memorial Hospital Chicago, IL
 As individuals with Phenylketonuria (PKU) become older, an increasing number experience difficulty maintaining the phenylalanine-restricted diet. Four members of the PKU medical team, two dietitians, a social worker, and an education coordinator, at Children’s Memorial Hospital (CMH) in Chicago, implemented a PKU Boot Camp. The goal was to offer an educational opportunity outside of a routine clinic appointment to further emphasize the importance of treatment adherence and to build upon skills to effectively manage this condition. Read more. |
Tasty Success at Malathy's "Low Pro" Cooking Workshop!
 Families from Ohio and Kentucky came with mixing bowls and spatulas in hand for an all day low protein workshop in Columbus, OH on Saturday, July 9, 2011. Malathy Ramanujam, owner of Taste Connections, Inc., traveled from California to instruct participants on how to make tasty and economical low protein entrees, side dishes, breads and desserts the quick and easy way! Learn more. |
Patient Testimonials
My Typical Day and Diet When I Travel
 Bharat Ramanujam loves to travel (Washington DC, Chicago, Italy, Australia and more) and doesn’t let his need for low-protein foods get in the way. See his special hash brown recipe and learn more.
Airline Travel and Metabolic Formula
 Therese Walters, PT and mother of Kelly (age 21, Homocystinuria) provides insights into how those with medical formula requirements can travel with the new airline security regulations restricting passengers from carrying liquids on airplanes. Read more.
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"Just So Easy" cooking corner by Malathy – Low-Protein Eggless Funnel Cake
 Try this tasty and festive summer treat from Malathy Ramanujam from Taste Connections® (TC) - a perfect treat for any occasion! See the recipe. |
National PKU Alliance (NPKUA) Updates
 The National PKU Alliance (NPKUA) works to improve the lives of children and adults living with PKU and pursue a cure. For an update on our recent activities, click here. |
Upcoming Special Occasions and Events
 Take me out to the ball game...and treat me to a low protein meal and party!
Pittsburgh Pirates Baseball Game & Left Field Meeting Space Party and Meal.
Vitaflo USA is sponsoring for MACPAD W PA & Children’s Hospital of Pittsburgh.
Sunday, August 21, 2011 11 am – 4 pm.
Reservations Required. FREE Pirates Game Tickets – 6 tickets per patient.
Questions or for an invitation, please contact Monica Cengia Vitaflo USA at 937-760-1985 or monica.cengia@vitaflousa.com
 Taste Connections Low Protein Cooking Workshop – Syracuse, NY
Saturday, September 17th, 2011 9 am – 3 pm.
Malathy Ramanujam will be leading small groups in her hands-on low protein cooking workshop.
Learn how to master the techniques of making easy, delicious and economical low protein foods in your own home!
Registration Required. Free Program! Lunch included. Ages 6 +.
Questions or for an invitation, please contact Monica Cengia at 937-760-1985 or monica.cengia@vitaflousa.com
 Low Protein Cooking Workshop by Malathy Ramanujam from Taste Connections, Inc.
April 12, 2012
Middleton, OH
Get hands on experience while learning how to make delicious and economical low-protein foods in this spectacular workshop!
Free program for ages 6 and up, sponsored by Vitaflo USA. Lunch Included!
Watch for an invitation with RSVP in February 2012.
Questions? Contact Monica Cengia at 937-760-1985 or monica.cengia@vitaflousa.com
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