Useful Links

We strive to offer you the best information and resources accross the internet. Disseminating information on the web can be a challenge. We have included useful links to organizations, health resources, fun stuff, and more. If you have a useful link we should include in this section, feel free to email info@vitaflousa.com for us to review the resource and include the useful link.

Advocacy & Organizations

National Organization of Rare Disorders (NORD)
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Genetic Metabolic Dietitians, International (GMDI)

Society of Inherited Metabolic Disorders (SIMD)

 

Fatty Acid Oxidation Disorders

Fatty Acid Oxidation Disorder Association

 

MSUD

MSUD Family Support Group
The MSUD Family Support Group is a non-profit 501 (c)(3) organization for those with MSUD and their families and includes health-care professionals and others interested in MSUD.

 

Organic Acidemias

Propionic Acidemia Foundation
The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organic Acidemia Association
The Organic Acidemia Association is a volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders.

 

PKU

Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD)
The Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD) is a non-profit 501(c)(3) organization, dedicated to improving the health and well being of individuals and families affected by Phenylketonuria (PKU) and related metabolic disorders.

National PKU News
National PKU News is a non-profit organization located in Seattle, Washington. It is dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria.

The Canadian PKU and Allied Disorders

New England Connection for PKU and Allied Disorders
NECPAD was created in the early 1990s to meet the need of several families in the New England area who were starved for information on PKU and other metabolic disorders.

National PKU Alliance (NPKUA)

 

Urea Cycle Disorders

National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation is a non-profit organization dedicated to the identification, treatment and cure of urea cycle disorders. NUCDF is a nationally-recognized resource of information and education for families and healthcare professionals.

 

 

 

Resources

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